We have a joke between James and Cynthia (Nicholas’s parents) that Nicholas wants to be just like Jack. He is about a week behind Jack in a couple of ways. He is exactly one week younger then Jack, and he was also put on ECMO one week after Jack. While they have similiar stories, there are also major differences. Nicholas’s little lungs are what is causing his issues, for Jack; it’s his heart. Today was Nicholas’s 14th day on ECMO and Jack’s 20th.Today Nicholas decided he didn’t want to be a copycat anymore, and he wanted to take the lead. They did an “ECMO off” trial today where they pulled him off of ECMO for a little under an hour. They decided that he was ready to come off completely, so Nicholas is now ECMO free and holding his own. He is still sick, but this is definitely a step forward for Jack’s little neighbor.
We are so happy for the McLaughlin family. What a great day for them! Hopefully little Jack will soon follow his friend’s lead.Jack’s lungs continue to look good, and yesterday’s ultrasound showed no bleeding. Tomorrow they will do another echo of his heart to see if there is any change from last week (5 days ago.) My heart is aching for
We are not opposed to a Christmas miracle.