Jack had to be taken off his regular ventilator today and put on a different type of ventilator called an oscillator. It’s a high frequency ventilator that does a lot more of the work for him – in fact, it is making it so he is taking 10 breaths per 1 second. I don’t even understand it all myself, so it’s hard to explain. I do know that it’s a little more intense then the regular ventilator. It makes his little body shake, and it’s not fun to look at. He had been riding at “stable” for the past couple of days, but last night his numbers took a little dip so they thought it best to switch him. Since they made the switch, he has continued to be “stable”.
It was hard to walk in this morning and see him on the oscillator. We were extremely dissapointed that they did not call and tell us about the switch. It was not a fun surprise, and it is, like I said, an intense machine. We have had a hard time with our nurse the last couple of days (our daytime nurse) and have found ourselves getting frustrated with her often. She has been dishonest with us several times, and doesn’t seem to take him as seriously as we would like. I don’t think it is fair that parents should have to worry about the competency of their nurse on top of all the other things we worry about. I was telling my mom that if there is one bad thing about having a great nurse – it’s being able to recognize when you have a not so great nurse. I think that I have finally figured out who to talk to about being unhappy with this certain nurse, so I will request to NEVER have her again.
So today was an emotional day. Seeing him on this new machine is hard – especially when we don’t know what it all means as far as how he is doing. It’s hard to get a straight answer from anyone – especially when they don’t have straight answers to give. We had a nice visit from some friends today as well as from our bishop (who is also our friend). They reminded us how much everyone loves and cares about us. We know there are SO many people thinking about us and praying for us at this time. We are so grateful to everyone for their love and concern.
Last night I wanted to hold Jack more than I have wanted to this entire time. It just hit me so hard how badly I wanted to touch him!!! We love him too much. Although intense, we are hopeful that this new machine will work for our little Jack.